A Poem – ME/CFS; An Opening into Transformation

A Poem about growth, and real life for all those who have had an experience with debilitating health, (CFS / ME, POTS, and Fibromyalgia). I wrote this to help inspire people who need it, and lighten up the subject, but be honest about how challenging it can be. Life is all around us, even when we may be being pushed beyond our limits. It’s at these trying times, that life becomes even more special. When everything slows down, and you are so in the moment, even in the midst of something terrible, there is peace, and connection.

If it resonates then please feel free to share it.

Empowerment & Taking Action

We can all feel dis-empowered at times, especially when things aren’t going our way, we are battling things beyond our control, or we feel low. When in this place, there are some things that we can do to feel more confident and capable again, despite our situation. In this video I will show you my formula, (at the end), for making changes. Some things we need to accept, and this allows us to manage our feelings about our situations, but other things need shifting. When change is required, taking action is the prime route toward making yourself, and your world, a happier, and more harmonious place to be. Taking appropriate action doesn’t have to be pushy, or forceful, it can be loving and sensible. It will lead to a better feeling of overall personal power, which comes from listening in and being responsive, rather than living up to an image you hold of yourself. Even when facing difficult situations, you can move through them.

Watch this video for the lowdown on the difference between empowerment and feelings of dis-empowerment, and learn about the process I use for making positive changes. Everything begins inside, so use the force within to guide you, and master your own thoughts so you stay focused and away from unhelpful thinking. You can do it! For more inspiration, or for info about services visit: http://www.lifepathinspiration.com

Guide to Setting Smart Goals

Taking action provides us with a sense of personal power. When we don’t like something, are unhappy, or want more positive qualities in our life, we must make a conscious choice for it to come about. Rather than giving in, or resigning ourselves to more of the same, we can get stuck in and make an effort to be proactive.

Do keep in mind however, that especially when it comes to situations of recovering health, that in some cases, the action may be less about doing and more about making a decision to accept a current situation and make the best of things, until more activity and ability to move forward can be taken. Acceptance in general can be deceiving, we may at first think that it is giving into weakness, or even apathy, yet it’s often the first stage to true transformation; and this stage cannot be rushed. Things don’t end at acceptance, it’s just an essential step for any type of new birth in life.

Once you have accepted your current reality as it is, including all “perceived” and real limitations, then you are ready to see what is truly possible. Often we don’t know what we are completely capable of, until we try. This is especially true when treading new horizons in our world. Be prepared for all manner of events, as you step into a slight unknown.

A goal comes about once the desire for change is big enough for you to devise a plan or create an aim to make a new or different step. This visionary stage is the first step. Often, if the feeling for something more positive in your life is strong enough, then you will have the fuel to get you through each stages of achieving your goal.

There are certain highly regarded qualities which are normally at the heart of our desire, which lie behind our goal. We don’t always recognise these at first, but it can help to look deeply into our bubbling passion, because once we understand these universal qualities, we can attract greater assistance from the universal flow of our life. In a nutshell, it brings us into a place of deeper manifestation.

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Building a Recovery Plan – How to Do it!

recovery plan and strategiesI guess it wasn’t until I truly made a type of recovery plan, that things started to come together. I also didn’t do this until three months after diagnosis, on the back of a major relapse. Until you’re diagnosed it’s hard to set any helpful ideas in place, because you’re just in a shitty place wondering what the hell is happening to your body. Sadly I was in this position for a year and a half, which was too long, and which made my health worse because of a spiral of panic.

So the plan comes about, I guess at a different time for everybody. Even though in May 2014, I started to receive more specific help from my local ME/CFS service, it was limited and I needed to create something which I felt would address all areas where there was stress or weakness, not just physically but also psychologically. I knew there were cycles within cycles occurring and I needed to get free of them.

After hitting almost bottom again after a few months of progression, I realised I needed a foundation to see me through and help me gain some greater control. Funnily enough the plan I mapped for healing my body, looks to me now, like areas which contribute to a balanced life. I didn’t know then I was to be re-modelling my world, which continues!

One of the best ways to understand something is through a visual representation, so I made this video which outlines the main areas I added to my plan, and which can hopefully be useful for yours.

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Ways to Shine

When we work on ourselves, everything outside is a reflection of what we find on the inside. Here is an uplifting video with some advice for helping yourself to gain personal power and inner freedom. You can still be illuminating and glowing, even when you aren’t feeling all that well, it’s a state of mind and a feeling of gratitude.

Ultimate Recovery Tips

  1. Learn to listen to your body
  2. Don’t get attached to ME/CFS and Fibro as your identity
  3. Support the immune system with sleep and supplements
  4. Prioritize, Plan, Pace, Present moment
  5. Eat clean and healthy
  6. Allow yourself to receive and nurture yourself
  7. Set realistic, sustainable goals
  8. Do daily exercise, (as soon as you can, even if its stretches)
  9. Become your own health investigator
  10. Read “CFS 50 Recovery Stories” & “Mitochondria not Hypochondria”.
  11. Have a continual project or focus you can dip in and out of
  12. Practice meditation and relaxation techniques
  13. Connect with others when you can
  14. Try not to get over-excited or over do things
  15. Calm the nervous system
  16. Get out to nature
  17. Say “no” more
  18. Invest in private tests or specialist GP / Clinic if your case is complex
  19. Find balance between mind and body. I.e get them working together
  20. Screw being perfect or achieving
  21. Know your limits
  22. Love who you are, without the need to be or do anything
  23. Visualise a healthy, healed you
  24. Don’t get too tired, lonely, hungry, bored or cold/hot
  25. Learn your personality type and transform your unhelpful habits

What I’ve Tried – A list of Helpful Things

 There have been a lot of tools and practices that have helped me to feel somewhat better. Some activities / aids, increase my energy or accelerate my body’s healing ability and others have been less helpful or had little effect.

I’ve added stars against things that helped, and most of these I continue to use regularly as part of my tailored recovery treatment plan. The rating is as follows

  • 0 Stars = no change
  • 1 Star = slightly helpful / improving energy or decrease in symptoms
  • 2 Stars = significant improvement
  • 3 Stars = most helpful, use frequently
  • Sad face = made things worse

Here is a list of my tried treatments and activities:

  • Meditation🌟🌟🌟
  • Accupressure massage🌟
  • Indoor Pilates🌟🌟
  • Pacing🌟🌟
  • Occupational health therapist🌟
  • Graded Exercise Therapy🌟
  • Private blood/saliva testing 🌟🌟

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The Power of Intention

 Last year I created this vision board, when I was really struggling on my recovery. I remember finishing it off in December on a day where it hurt just to hold the scissors and turn the pages of the magazine. Now, eight months on, I’ve achieved the majority of goals within this vision. My bum still isn’t quite like the beautiful peach depicted on the board but I continue to work on it. However, I did have some more pressing things to focus on over the year.

I imagine the aspects we want most desire from our hearts, are the things which come to fruition quickest or easiest. The ball really got rolling last Sept/Oct, after a major relapse in August last year. There have still been hard days and weeks. My health is still mending and there remain ups and downs, albeit less extreme, but there has been much change. Here’s a run through in relation to my vision board: Continue reading

Gratitude list – All the things I can now do…

 Thank the heavens for supermarket trips and stand up showers!

I get so focused a lot of the time on getting further and rushing on to the next step of the recovery ladder, that often I forget to see how far I’ve come. It’s a common thing I’m sure…we all take for granted. I never thought I would again, and I do feel appreciative of all the small things, although I can still let it slip my mind.

To remind me of how much things can change when you think they never will, and to show you, you can regain your life again, here is my list of things I couldn’t do for a while and now I’m grateful for:

I’m so thankful for:

  • Being able to wash my own hair
  • Bike rides
  • Kayak trips
  • Spending time with old and new friends
  • Getting to use public transport

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