ME Awareness Week – Some Insights for You

Recovery is often Possible – The Tortoise Wins the Race

This week it’s all about ME awareness. People diagnosed with ME/CFS and or Chronic Fatigue Syndrome often have a hard path with life. It’s not easy because – A: It’s still not very well understood in the general public, and B: It can feel like living with a body that’s totally out of your control.

Experiencing continual, debilitating fatigue, which really is just the tip of the iceberg, is a daily challenge. I know because I’ve been there. It’s not like having a normal sickness, where if you’re unlucky, it hangs around for a month or two. This is full time, everyday and night, never knowing when you will find your old body, or get your life back again. It goes on, and on, and on. This in itself creates the constant stress and cyclical nature of anxiety and depression. It’s almost impossible to understand it, even for the individual suffering, and the barrage of awful symptoms create suffocating cycles, within cycles, creating one of the most intelligent assault courses, more maze like then anything known to man.

This may all sound a little dramatic, but these words don’t compare to the level of intensity, or the level of faith and hope that is required for people having this bodily experience. A doctor once said to me, “for whatever reason, if the body goes out of alignment physiologically on a large scale, it’s really hard to get it back”. In essence many body systems begin to lose touch with supporting each other. This is why ME/CFS often concerns the Immune, Nervous, Endocrine, Cardiovascular and Digestive systems.

The good news is, I like to give evidence that it’s very much possible to get to ever increasing levels of wellness. I’m here to demonstrate example to that. As you can see in my brief images, my life was one of hospitals and crap times, hardly being able to function, for a few years, but in the recent years, I’ve been extending my boundaries and achieving great physical feats, like walking over 40 miles in a week on holiday and getting my swimming and kayaking mojo back.

I was diagnosed with ME/CFS and Fibromyalgia in 2014 – about one and a half years into the dark zone and was already using a wheelchair. I was later diagnosed with POTS. I’d been diagnosed with EDS (Hypermobility Syndrome in 2009), but at that time I was fit and healthy, albeit with some back problems.

I’d estimate that the main part of the journey – from bed / sofa bound, wheelchair using, to functioning back in life, exercising and working, took around 5/6 years, from 2013 onward. Obviously I’d add an extra year moving in toward decline, and further years of reaching the holy gospel of “vitality” again. After all, the dream isn’t just about functioning right? Recovery to me was always about feeling that vital place in my body again. So that’s around eight years for me! Eight years is a long time to learn, grow, heal, and transform, and that’s what you have to do if you have any intent to recover physically, mentally and emotionally. This is why I often remind my clients, moving through this gauntlet is akin to the most profound type of behaviour / life change you can imagine. You’re literally carving out a new version of yourself, one guided by body, and something other than the personality that led you down the rabbit hole.

Ok – so maybe it’s not such a psychological journey, for everyone, or maybe for some the road is more cause and effect, it’s structural – I.e. they got an infection and have to go on a long journey to heal the body, however whether they like it or not, the path will require of them to grow in intensity, so they wouldn’t be the same person once physically better. It still involves mastering your psychology to some degree.For others of us, the stage was set because of a physical and psychological crash, with enough biological imbalances to set up the scene for a long dark night of the soul. In this case, your healing won’t be complete until you have transformed huge aspects of your personality, lifestyle and or traumas from your life.

In reality, it doesn’t matter how this doorway was entered, because we can’t truly separate, body, mind and emotional life. If we are lucky, soul will teach us how to get through to alignment. Perhaps this alignment will be one far greater than you’ve ever imagined. After all, I do see, time and time again, the lack of balance or relationship to self for those who get caught in the CFS spiders web – in the outset, at any rate.

The confusing thing is, normally, there’s not “one thing” to fix the situation. Instead the journey is the finding out, through trial and error, what’s going on in your individual physiology and what works to bring about healing. However, despite differing symptoms, and varying puzzle parts, the journey needs the same components to recovery for everyone. Equally there are the same potential blocks for all, regardless of personal body journey. There are trends, and those of us in the world that seek to assist people in recovery seemed to have all found them, and this is because we have lived through it. We have experienced the journey to such a deep level, and those cycles, especially relapse cycles, that our minds have created awareness about the processes involved, both from an external strategy point of view and from an internal place of emotional and mental intelligence. Here, knowledge and experience is key.

If I could express any advice today to someone who struggles with ME/CFS or knows someone dealing with this experience, then I’d say, have faith, determination, and a drive to know why, and then how.

In the future I’m going to offering even more ME/CFS support in the form of webcasts and workshops, but for now I offer a series of sessions / course of one to one support for people wanting to heal from ME/CFS, Fibromyalgia and POTS.

These are also easily accessed long distance. To find out more, message me direct.

Take care of yourself.

Come Join Me for an Inspiring Workshop!! I’d love to meet you :)


If you follow my blog here, than I am saying a big thanks to you! I really hope you have found this place inspiring. I am so grateful that I am feeling pretty good these days, and I am so glad that I can be back to my old self in some ways, with a mixture of newness if you know what I mean 🙂 getting back to doing workshops, and sessions with people feels amazing, so of course, there was going to come a time that a workshop on this juncture of my life would arise, and that time is now! I want to share so much with those who need it, to assist you with getting even quicker, or even easier to your next level of feeling good.

I am holding this workshop in Leigh on Sea on July 7th, and if you are able then I’d love you to join. There is a fee for the event as I will be working hard to put together an informative banquet of bits for you, and to create a lovely space for our group to get together. If you live anywhere not too far away, then I’d love to meet you! I’m only one hour train journey from London, and even if it’s tough, it will be worth it to meet some other inspiring people. I remember that back when I was so rotten, I needed to keep the belief alive, and when I took those tough steps to do something that would nurture, or support me, each time it was part of the overall structure I was creating for my recovery. If you want any more info on the event, you can find it at my facebook page here: ME/CFS, Fibro, POTS, and Hypermobility – Insights to Healing or you can give me a call to book, or check in with any questions you have: 07532753855. I hope to see you in July, and spread the word, if there is anyone else you think could benefit from attending.

P.S. can you find my typo in the advert, you get a prize if so! 🙂

Vision Update: 90% Achieved in 3 Years

As you may have seen from another post, as part of my own engineered recovery path I created this vision board a few years back. I just let my feelings guide me to all the things that I wanted to do and have again. Not just my health but my security and purpose in the world, not to mention fun.

At the time of creation I really did think it was pointless and many of these dreams, like getting back to work, being able to kayak, going on a train trip to London, not to mention going on a holiday – seemed like pipe dreams. I was still unable to walk more than around 200metres and I was crippled by pain which made me in an anxious state, also unable to get fully into the healing zone. I’d get a bit better then have another lapse, as there was hardly any room for error, whether it was overdoing it, like unloading the dishwasher, doing the vacuuming in stages, or seeing a friend for a cup of tea, or getting caught in no sleep because of pain or fear of the symptoms.

Something always drove me onward and kept picking me up, and that is the positive part of my mental conditioning. Often our personalities, can be both the cause and the cure for why we end up in a pickle or a life nose dive. This I’ve now learned, and knowing your particular mental conditioning can certainly lead you on the road to sculpting it into something more useful. Equally corroding enough of your solid personality, will allow for your deeper Self – the part that has all the wisdom, power and loving simplicity to take the reigns.

Through a number of qualities I can now say I’ve achieved 90% of what I believed was not possible, despite a deep desire to turn things around, in fact I was growing in new ways, so I didn’t fully register.

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Starting a New Job! A Big Yes to Getting our lives back…

Last year I had so many firsts, in a long time. I’ve worked so hard on my health recovery, and I’m proud of each new achievement, not only the big ones, but all of those tiny little markers, and milestones that have formed the foundation to my increasing health, stability, and what I see as a re-birth.

A few years back, the thought of working again seemed an impossible reality. Especially when I was in a wheelchair for a year, with a further two years of very little mobility. If you had told me then, that I could work two jobs, then I likely would have laughed.

Now it’s my reality.

In the continual vein, of arranging my life to suit my new self-care regime, and all of the personal changes that I’ve encountered, it’s been very important to work in a way that feels good to me. This means, work that I enjoy, that is kind to my body, which uses my skills, and gifts, and that gives me room to pace to some degree.

I wholeheartedly believe that individuals who have gone through such a difficult, yet transformative experience, such as a health crisis that lasts many years, need to revisit their values, and honour a new passage in terms of how they operate a career, or earn money.

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A Poem – ME/CFS; An Opening into Transformation

A Poem about growth, and real life for all those who have had an experience with debilitating health, (CFS / ME, POTS, and Fibromyalgia). I wrote this to help inspire people who need it, and lighten up the subject, but be honest about how challenging it can be. Life is all around us, even when we may be being pushed beyond our limits. It’s at these trying times, that life becomes even more special. When everything slows down, and you are so in the moment, even in the midst of something terrible, there is peace, and connection.

If it resonates then please feel free to share it.

Empowerment & Taking Action

We can all feel dis-empowered at times, especially when things aren’t going our way, we are battling things beyond our control, or we feel low. When in this place, there are some things that we can do to feel more confident and capable again, despite our situation. In this video I will show you my formula, (at the end), for making changes. Some things we need to accept, and this allows us to manage our feelings about our situations, but other things need shifting. When change is required, taking action is the prime route toward making yourself, and your world, a happier, and more harmonious place to be. Taking appropriate action doesn’t have to be pushy, or forceful, it can be loving and sensible. It will lead to a better feeling of overall personal power, which comes from listening in and being responsive, rather than living up to an image you hold of yourself. Even when facing difficult situations, you can move through them.

Watch this video for the lowdown on the difference between empowerment and feelings of dis-empowerment, and learn about the process I use for making positive changes. Everything begins inside, so use the force within to guide you, and master your own thoughts so you stay focused and away from unhelpful thinking. You can do it! For more inspiration, or for info about services visit:

Guide to Setting Smart Goals

Taking action provides us with a sense of personal power. When we don’t like something, are unhappy, or want more positive qualities in our life, we must make a conscious choice for it to come about. Rather than giving in, or resigning ourselves to more of the same, we can get stuck in and make an effort to be proactive.

Do keep in mind however, that especially when it comes to situations of recovering health, that in some cases, the action may be less about doing and more about making a decision to accept a current situation and make the best of things, until more activity and ability to move forward can be taken. Acceptance in general can be deceiving, we may at first think that it is giving into weakness, or even apathy, yet it’s often the first stage to true transformation; and this stage cannot be rushed. Things don’t end at acceptance, it’s just an essential step for any type of new birth in life.

Once you have accepted your current reality as it is, including all “perceived” and real limitations, then you are ready to see what is truly possible. Often we don’t know what we are completely capable of, until we try. This is especially true when treading new horizons in our world. Be prepared for all manner of events, as you step into a slight unknown.

A goal comes about once the desire for change is big enough for you to devise a plan or create an aim to make a new or different step. This visionary stage is the first step. Often, if the feeling for something more positive in your life is strong enough, then you will have the fuel to get you through each stages of achieving your goal.

There are certain highly regarded qualities which are normally at the heart of our desire, which lie behind our goal. We don’t always recognise these at first, but it can help to look deeply into our bubbling passion, because once we understand these universal qualities, we can attract greater assistance from the universal flow of our life. In a nutshell, it brings us into a place of deeper manifestation.

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Building a Recovery Plan – How to Do it!

recovery plan and strategiesI guess it wasn’t until I truly made a type of recovery plan, that things started to come together. I also didn’t do this until three months after diagnosis, on the back of a major relapse. Until you’re diagnosed it’s hard to set any helpful ideas in place, because you’re just in a shitty place wondering what the hell is happening to your body. Sadly I was in this position for a year and a half, which was too long, and which made my health worse because of a spiral of panic.

So the plan comes about, I guess at a different time for everybody. Even though in May 2014, I started to receive more specific help from my local ME/CFS service, it was limited and I needed to create something which I felt would address all areas where there was stress or weakness, not just physically but also psychologically. I knew there were cycles within cycles occurring and I needed to get free of them.

After hitting almost bottom again after a few months of progression, I realised I needed a foundation to see me through and help me gain some greater control. Funnily enough the plan I mapped for healing my body, looks to me now, like areas which contribute to a balanced life. I didn’t know then I was to be re-modelling my world, which continues!

One of the best ways to understand something is through a visual representation, so I made this video which outlines the main areas I added to my plan, and which can hopefully be useful for yours.


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Ways to Shine

When we work on ourselves, everything outside is a reflection of what we find on the inside. Here is an uplifting video with some advice for helping yourself to gain personal power and inner freedom. You can still be illuminating and glowing, even when you aren’t feeling all that well, it’s a state of mind and a feeling of gratitude.