Exercising After A Health Crisis – Body Adventures

In the last two years, I’ve slowly integrated more exercise than I did before my physical crash. I do around 50,000 steps a week, pilates at home once a week, exercise biking a couple of times a week and now swimming every two weeks. The art of rebuilding something as precious as one’s body, and healing the self, reminds me that we must be patient with ourselves, yet never give up. I’m far away from the wheelchair times, and I’m thankful for each phase of the journey.

I recently took a fun, yet challenging trip out to a local shipwreck, “The Mulberry” in Southend on Sea. I hadn’t walked out to this area for years before my crash, and it was on my goal list to see if I could do it.

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Come Join Me for an Inspiring Workshop!! I’d love to meet you :)

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If you follow my blog here, than I am saying a big thanks to you! I really hope you have found this place inspiring. I am so grateful that I am feeling pretty good these days, and I am so glad that I can be back to my old self in some ways, with a mixture of newness if you know what I mean 🙂 getting back to doing workshops, and sessions with people feels amazing, so of course, there was going to come a time that a workshop on this juncture of my life would arise, and that time is now! I want to share so much with those who need it, to assist you with getting even quicker, or even easier to your next level of feeling good.

I am holding this workshop in Leigh on Sea on July 7th, and if you are able then I’d love you to join. There is a fee for the event as I will be working hard to put together an informative banquet of bits for you, and to create a lovely space for our group to get together. If you live anywhere not too far away, then I’d love to meet you! I’m only one hour train journey from London, and even if it’s tough, it will be worth it to meet some other inspiring people. I remember that back when I was so rotten, I needed to keep the belief alive, and when I took those tough steps to do something that would nurture, or support me, each time it was part of the overall structure I was creating for my recovery. If you want any more info on the event, you can find it at my facebook page here: ME/CFS, Fibro, POTS, and Hypermobility – Insights to Healing or you can give me a call to book, or check in with any questions you have: 07532753855. I hope to see you in July, and spread the word, if there is anyone else you think could benefit from attending.

P.S. can you find my typo in the advert, you get a prize if so! 🙂

Vision Update: 90% Achieved in 3 Years

As you may have seen from another post, as part of my own engineered recovery path I created this vision board a few years back. I just let my feelings guide me to all the things that I wanted to do and have again. Not just my health but my security and purpose in the world, not to mention fun.

At the time of creation I really did think it was pointless and many of these dreams, like getting back to work, being able to kayak, going on a train trip to London, not to mention going on a holiday – seemed like pipe dreams. I was still unable to walk more than around 200metres and I was crippled by pain which made me in an anxious state, also unable to get fully into the healing zone. I’d get a bit better then have another lapse, as there was hardly any room for error, whether it was overdoing it, like unloading the dishwasher, doing the vacuuming in stages, or seeing a friend for a cup of tea, or getting caught in no sleep because of pain or fear of the symptoms.

Something always drove me onward and kept picking me up, and that is the positive part of my mental conditioning. Often our personalities, can be both the cause and the cure for why we end up in a pickle or a life nose dive. This I’ve now learned, and knowing your particular mental conditioning can certainly lead you on the road to sculpting it into something more useful. Equally corroding enough of your solid personality, will allow for your deeper Self – the part that has all the wisdom, power and loving simplicity to take the reigns.

Through a number of qualities I can now say I’ve achieved 90% of what I believed was not possible, despite a deep desire to turn things around, in fact I was growing in new ways, so I didn’t fully register.

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These Feet are Made for Walking

I’ve surpassed my walking dream 🚶🏼‍♀️!!

I used to struggle to stand up, and now I realise things have drastically changed.

On a recent holiday, my husband and I walked a total of 81,802 steps in 6 days, including travelling days! When I worked out the distance, I was shocked that I walked a total of 35 miles across the six days I spent in Spain. If you averaged this out, it meant that I was walking over 5.5miles a day.

Now this coming from someone who couldn’t walk more than 50metres a few years back is impressive.

I can now also walk very quickly up the three flights of seafront steps that I used to see as an impossibility for my future. In fact I’ve even run up them a couple of times. What can I say I wanted to feel like Rocky 🤣 I still have a little high tachycardia on reaching the top, but so do most people, so I’m not sweating the norm, which also continues to shift for me.

Moving toward more and more exercise after being POTS tastic is a great feeling. Everything in our stride. Along with pacing, rest, and a sensible regime you too could transcend your boundaries, and manoeuvre through fatigue.

You wouldn’t even care if you were symptomatic still if you could do the things you love, so keep striving for them!

Here’s to you walking, or swimming, dancing, doing whatever you enjoy again…

Victim to Victor – Thoughts on Change

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Can you turn from victim to victor? What do these archetypes mean? Maybe we need to find some balance in the way we relate to our weaknesses and strengths?

Having had a health crisis, and a big period of breakdown in my life, was the best thing that could have happened. It has allowed me to birth into something else. There are so many skills, tools and insights, that I have accumulated from this intense period of suffering, that have actually formed the foundations of my newly re-built life.

Until this juncture arrived, and slowly corroded me, I couldn’t truly know peace, I couldn’t love like I do now, and I couldn’t be as giving, or helpful to others. Equally, I couldn’t sustain success. Firstly because I had patterns that lead toward burnout, and secondly because I felt I didn’t deserve it, or it wasn’t possible.

The so called, corrosion that was happening, was not a literal diminishing, but instead, an unburdening, of neurosis. We all carry neurosis, it is the minds natural condition, yet, it is tiring being so caught up in self-preservation, self-gratification, and the need for love, safety and approval from outside sources. It’s only when our soul is moved, even through pain, that we can begin to experience life from another position. This is the position of feeling, and the acceptance of what is, or the appropriate response toward change, in any one moment.

The most crucial movement that I took, time and time again, to continue to improve my situation, and to grow, was action. Yet the most beneficial realisation I had in all the difficulty was to remember, continually, that I was the only one who was responsible for my life. No other person, could save me, or change for me what needed fixing.

There is often a real emergency when this symbolic situation shows up, and there is only one choice that can lead to transformation.

Once you make the decision to be responsible for your life, things change.

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Starting a New Job! A Big Yes to Getting our lives back…

Last year I had so many firsts, in a long time. I’ve worked so hard on my health recovery, and I’m proud of each new achievement, not only the big ones, but all of those tiny little markers, and milestones that have formed the foundation to my increasing health, stability, and what I see as a re-birth.

A few years back, the thought of working again seemed an impossible reality. Especially when I was in a wheelchair for a year, with a further two years of very little mobility. If you had told me then, that I could work two jobs, then I likely would have laughed.

Now it’s my reality.

In the continual vein, of arranging my life to suit my new self-care regime, and all of the personal changes that I’ve encountered, it’s been very important to work in a way that feels good to me. This means, work that I enjoy, that is kind to my body, which uses my skills, and gifts, and that gives me room to pace to some degree.

I wholeheartedly believe that individuals who have gone through such a difficult, yet transformative experience, such as a health crisis that lasts many years, need to revisit their values, and honour a new passage in terms of how they operate a career, or earn money.

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I’m so happy I can swim again.

I want to inspire you to believe you can do the things you once did, before the time you crashed, before your body had a fall, and your life changed, perhaps somewhat, or more drastically.

Please be motivated by this post, because I wish that I could have spoke to my suffering and frightened self a few years ago, to reassure myself that things would change.

Recently I completed a massive goal that had been seemingly impossible for a long time, and this in turn branched off into more goal progress in other areas, which I’m now going to talk about, as those little branches, and roots are what keeps the journey evolving and spreading out like a positive, healing wildfire.

I went on my first holiday abroad in a very long time, see another post about the adventures with this big triumph, and during this big achievement I solidified something I had been trying to do for a while, which was to extend to my next exercise level.

I love to swim and a beach holiday was a prime opportunity for more playing around with this deep desire.

The sea, and the holiday pools I had fun in recently, helped me to strengthen a goal that had got somewhat waylaid in 2017. Swimming!

During the recovering stages it’s trial and error for a long time, or so I found out. Swimming has always been a big love for me to get back to. My husband would often say, oh you’ll get back to swimming at some point, and despite my strong desire to achieve, if I’m honest, my mind would automatically chirp up with, “I don’t think that’s ever going to happen.”

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A Poem – ME/CFS; An Opening into Transformation

A Poem about growth, and real life for all those who have had an experience with debilitating health, (CFS / ME, POTS, and Fibromyalgia). I wrote this to help inspire people who need it, and lighten up the subject, but be honest about how challenging it can be. Life is all around us, even when we may be being pushed beyond our limits. It’s at these trying times, that life becomes even more special. When everything slows down, and you are so in the moment, even in the midst of something terrible, there is peace, and connection.

If it resonates then please feel free to share it.

The Art of Pacing

Slowing down for me, is a continual process. I have a super speed mind and I’ve had to train myself, that just because I think quick doesn’t mean I should act so speedily. In fact, thinking less has been most rewarding. Feeling more and simply being has been at the heart of not only my health recovery, but in the foundations of my revised life.

It takes a great deal of discipline to pace, for some it may be easier than others. The inner critic has a lot to do with why we push beyond our boundaries rather than work within our limits, but that’s another blog.

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List of “Abnormalities” – Being Your Own Health Investigator

mecfsrecoveryA diagnosis is not the end of things. It can be the start of your commitment to getting well, but the variety of difficulties and differences, the people placed within the ME/CFS label suffer is wide. This can be true of any health crisis and chronic illness. In a way the diagnosis is the start of the journey and the end to whatever that wasn’t working about you and your life, that went before. 

However there seems to be a different version of something similar in each case, although there are certainly common markers to the symptoms and personality types that are diagnosed. Some cases are more simple and others more complex. Mine has been the latter situation. However, not wanting to underestimate or make light of the situation, even with the simple cases of ME/CFS, it can still take a vast amount of time, likely years to recover.

Finding out what is really going on for you, biologically and emotionally is very important. The main areas to rule out first, and at little cost to you, are vitamin and mineral deficiencies, which a large amount of people with ME/CFS seem to have, in addition to the staple immune and nervous system irregularities. In my case I have also found imbalances within my endocrine system. My hormones are imbalanced, and so I am addressing this with a specialist soon, after being quite disgusted at how limiting the service is within the Endocrinology department on the NHS. Continue reading