Testing can become an important area for health recovery. Diagnosis doesn’t necessarily mean the end to your health investigations, and certainly for ME/CFS peeps, it’s not advisable to leave your testing and results in the hand of your GP or even ME/CFS service. You’ve got to get a full picture for yourself.
It’s essential you take some responsibility here if you want to properly heal. Even if you’re on medication, this won’t solve the root cause, it’s just a crutch to help with pain and for management purposes. Try to get knowledgeable about what you’ve been tested for, what’s been ruled out and what needs further attention. Here’s a list of essential things to know about your tests:
- It’s a myth that your Doctors surgery contact you if a test has come back abnormal. Often the tests aren’t looked at until you’ve made the appointment and you are sitting in the same room with your GP unless I’m the case of emergency testing. In one case, I found a immune test which was abnormal, and even had highlighted the words: CONTACT PATIENT, three years after this particular test. In fact it was in the first batch of tests I had, just when I began to feel unwell – what I now know to be the start of ME/CFS!
- Ring ahead of your appointment and ask for a print out copy of your blood tests – look them over first before your appointment