I guess it wasn’t until I truly made a type of recovery plan, that things started to come together. I also didn’t do this until three months after diagnosis, on the back of a major relapse. Until you’re diagnosed it’s hard to set any helpful ideas in place, because you’re just in a shitty place wondering what the hell is happening to your body. Sadly I was in this position for a year and a half, which was too long, and which made my health worse because of a spiral of panic.
So the plan comes about, I guess at a different time for everybody. Even though in May 2014, I started to receive more specific help from my local ME/CFS service, it was limited and I needed to create something which I felt would address all areas where there was stress or weakness, not just physically but also psychologically. I knew there were cycles within cycles occurring and I needed to get free of them.
After hitting almost bottom again after a few months of progression, I realised I needed a foundation to see me through and help me gain some greater control. Funnily enough the plan I mapped for healing my body, looks to me now, like areas which contribute to a balanced life. I didn’t know then I was to be re-modelling my world, which continues!
One of the best ways to understand something is through a visual representation, so I made this video which outlines the main areas I added to my plan, and which can hopefully be useful for yours.