In the last two years, I’ve slowly integrated more exercise than I did before my physical crash. I do around 50,000 steps a week, pilates at home once a week, exercise biking a couple of times a week and now swimming every two weeks. The art of rebuilding something as precious as one’s body, and healing the self, reminds me that we must be patient with ourselves, yet never give up. I’m far away from the wheelchair times, and I’m thankful for each phase of the journey.
I recently took a fun, yet challenging trip out to a local shipwreck, “The Mulberry” in Southend on Sea. I hadn’t walked out to this area for years before my crash, and it was on my goal list to see if I could do it.
I’ve surpassed my walking dream 🚶🏼♀️!!
I used to struggle to stand up, and now I realise things have drastically changed.
On a recent holiday, my husband and I walked a total of 81,802 steps in 6 days, including travelling days! When I worked out the distance, I was shocked that I walked a total of 35 miles across the six days I spent in Spain. If you averaged this out, it meant that I was walking over 5.5miles a day.
Now this coming from someone who couldn’t walk more than 50metres a few years back is impressive.
I can now also walk very quickly up the three flights of seafront steps that I used to see as an impossibility for my future. In fact I’ve even run up them a couple of times. What can I say I wanted to feel like Rocky 🤣 I still have a little high tachycardia on reaching the top, but so do most people, so I’m not sweating the norm, which also continues to shift for me.
Moving toward more and more exercise after being POTS tastic is a great feeling. Everything in our stride. Along with pacing, rest, and a sensible regime you too could transcend your boundaries, and manoeuvre through fatigue.
You wouldn’t even care if you were symptomatic still if you could do the things you love, so keep striving for them!
Here’s to you walking, or swimming, dancing, doing whatever you enjoy again…
Hmm, that question isn’t as easy to answer as you may think. In general in life, when we have to measure something there may be common markers or a clear scale, but for me, and I’m guessing many on the road to recovery, it can be hard to quantify. This is especially true when it comes to ME/CFS and Fibro because there can be many factors and stages. It also depends on what we define as recovery.
In general though, I am on the whole, feeling awesome, if not a little too over-excited to be so back in life again and not at home, unable to do much!
I’m probably around 60% which can go down to like 40 or 30 on crash days or setbacks. A lot of it has always depended on securing sleep, which has been the hardest area to stabilise. Along the way there have been different aspects of my body systems healing and times, where one factor is ticked off the list completely. There is more journey to go me but it’s safe to say there has been much success and recovery already…