I haven’t needed to use my wheelchair since November, (well apart from one trip to Homebase in December to choose a Christmas tree), but that doesn’t count because it wasn’t from the ME/CFS symptoms, it was more a case of a physical boom and bust. I had got a little over excited after a relapse and really wanted to get to a supermarket nearby, which meant I extended a graded walk up to 75% one day. Therefore I busted my knees up for a week. The cartiledge and tendons obviously still need more conditioning, you live and learn. Re-conditioning of the muscles and internal structures, when you’ve been seriously out of action for a year and a half just takes a little time but I’m getting there now.
It’s such a great feeling to progress to walking to and from places again, of course these are very short distances at the moment, of around 200 metres or 500 metres and longer paced walks with breaks. I just couldn’t stand being pushed around any longer and due to working my way back up with physio, I was ready to release it to the shed! My husband always said that I had to push him around in it for fun when I was well, so he may get a turn soon.
My journey with the wheelchair has taught me so much. I didn’t want it at all in the beginning, but of course if I got to the car, which was down steps from our apartment and up more steps to street level, then I was still unable to walk around a shop or out in nature. There were times my husband had to carry me in a fireman’s lift to the car as I couldn’t even get up the steps. I’m lucky he is a strong plumber man, used to carrying heavy boilers up flights of stairs.