I’m offering my next workshop in Westcliff on Sea, Essex at The Therapy Life Centre, which will look at your journey with one or more of these health conditions / experiences.
This is a chance to learn more about your experience and let me help you understand your journey of health rebuilding, both physically and psychologically. It’s also a great way to meet others who have experienced a similar path and feel supported and encouraged to continue evolving and caring for yourself.
You can book tickets online here. I would love to meet you. If you have any questions don’t hesitate to email me or the Centre for help with booking.
As you may have seen from another post, as part of my own engineered recovery path I created this vision board a few years back. I just let my feelings guide me to all the things that I wanted to do and have again. Not just my health but my security and purpose in the world, not to mention fun.
At the time of creation I really did think it was pointless and many of these dreams, like getting back to work, being able to kayak, going on a train trip to London, not to mention going on a holiday – seemed like pipe dreams. I was still unable to walk more than around 200metres and I was crippled by pain which made me in an anxious state, also unable to get fully into the healing zone. I’d get a bit better then have another lapse, as there was hardly any room for error, whether it was overdoing it, like unloading the dishwasher, doing the vacuuming in stages, or seeing a friend for a cup of tea, or getting caught in no sleep because of pain or fear of the symptoms.
Something always drove me onward and kept picking me up, and that is the positive part of my mental conditioning. Often our personalities, can be both the cause and the cure for why we end up in a pickle or a life nose dive. This I’ve now learned, and knowing your particular mental conditioning can certainly lead you on the road to sculpting it into something more useful. Equally corroding enough of your solid personality, will allow for your deeper Self – the part that has all the wisdom, power and loving simplicity to take the reigns.
Through a number of qualities I can now say I’ve achieved 90% of what I believed was not possible, despite a deep desire to turn things around, in fact I was growing in new ways, so I didn’t fully register.
I’ve surpassed my walking dream 🚶🏼♀️!!
I used to struggle to stand up, and now I realise things have drastically changed.
On a recent holiday, my husband and I walked a total of 81,802 steps in 6 days, including travelling days! When I worked out the distance, I was shocked that I walked a total of 35 miles across the six days I spent in Spain. If you averaged this out, it meant that I was walking over 5.5miles a day.
Now this coming from someone who couldn’t walk more than 50metres a few years back is impressive.
I can now also walk very quickly up the three flights of seafront steps that I used to see as an impossibility for my future. In fact I’ve even run up them a couple of times. What can I say I wanted to feel like Rocky 🤣 I still have a little high tachycardia on reaching the top, but so do most people, so I’m not sweating the norm, which also continues to shift for me.
Moving toward more and more exercise after being POTS tastic is a great feeling. Everything in our stride. Along with pacing, rest, and a sensible regime you too could transcend your boundaries, and manoeuvre through fatigue.
You wouldn’t even care if you were symptomatic still if you could do the things you love, so keep striving for them!
Here’s to you walking, or swimming, dancing, doing whatever you enjoy again…
A Poem about growth, and real life for all those who have had an experience with debilitating health, (CFS / ME, POTS, and Fibromyalgia). I wrote this to help inspire people who need it, and lighten up the subject, but be honest about how challenging it can be. Life is all around us, even when we may be being pushed beyond our limits. It’s at these trying times, that life becomes even more special. When everything slows down, and you are so in the moment, even in the midst of something terrible, there is peace, and connection.
If it resonates then please feel free to share it.
No-one escapes tough days in life, it’s part of the experience. There are hundreds if not thousands of reasons for these challenging days, but there is a common set of events that unite them. We are all built the same way, but it’s not so much the painful or disappointing situations that crop up in our daily lives that give us so much grief, more so, it’s the way we deal with them.
This common event is the body/mind reaction. It’s the way your mind, emotions and body reacts to the difficulty which arises. We can’t end suffering but we can find a way to be with the difficulty without adding to it.
Dwelling, giving in, denial, feeling sorry for the self, guilt, criticism and victim-hood are all approaches which prolong the pain. Whereas acceptance and appropriate action can bring about more peace whilst you deal with sadness, pain and other feelings, which we tend not to like spending much time with.
As a society, we have an aversion to “negative” feelings, but in fact, we can chose to stop seeing these emotions as a threat, and instead, acknowledge them more of a part of life. Trying to avoid unhappiness will only make it more painful when you experience it. It also sets up an in-authenticity and a shallow need for the constant good. Which we all would prefer, I’m sure, but if you realise that life is ultimately about growing, then you can’t grow if you only experience one side of life. What goes up, must come down, at somepoint!
If it still remains hard for the general medical profession to agree on what ME/CFS is, then how are we supposed to comprehend it when we have it ourselves. Furthermore, if we are the one experiencing the horrid, life altering experience, then how are those around us to understand our experience, or find ways to help.
This is why, in my opinion, it makes having this illness / condition / experience, or however you wish to frame it, a real tough situation to tackle, because there is just so much ambiguity, and even, in some cases, denial and judgement about the seriousness and reality of the actual bodily experience. This can and often does, lead to worsening cases of it when diagnosis is not swift, as in my case, and when information and support is not available at the outset. This lack of firm recognition can lead to further denial of the bodily experience, a tendency to, “battle on” and therefore, a deepening of the severity of ME/CFS and Fibromyalgia.
Action for M.E., a leading charity suggests: “Myalgic Encephalomyelitis (M.E.) is a long-term (chronic) fluctuating illness that causes symptoms affecting many body systems, more commonly the nervous and immune systems.
Defined by the World Health Organisation as neurological, M.E. affects an estimated 250,000 people in the UK, and around 17 million people worldwide.
Many people with M.E. experience persistent fatigue associated with what’s called post-exertional malaise (the body’s inability to recover after expending even small amounts of energy; sometimes also called ‘payback’) and chronic pain. However, M.E. is characterised by a range of additional symptoms.”